News

07.05.2021

International Thalassaemia Day – 8th May 2021

Take Action For The International Thalassaemia Day 2021 – TIF UK Thalassaemia Society | Breaking Down Barriers

What is Thalassaemia?

Thalassaemia is a chronic blood disorder affecting the genes that are responsible for production of red blood cells. This means that patients with Thalassaemia are dependent on regular blood transfusions throughout their lives. Without them they would die in early childhood.

Thalassaemia developed as an evolutionary response to malaria which is why it mainly affects those originating from regions such Asia, South East Asia, the Mediterranean, South America, the Caribbean, Northern and Central Africa and the Middle East. Though it was initially prevalent in these regions, due to the migration of communities over the centuries people with Thalassaemia now live all over the world. 10,000 babies are born with Thalassaemia every year. Screening during pregnancy is important.

For more information: https://ukts.org/

Read patient stories of people with Thalassaemia

Competition Time

Application form

Enter by FRIDAY 4th JUNE for a chance to win!

Local Support:

Due to COVID 19 this may be offered by phone or virtually.

 

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Oscar Sandwell

OSCAR Sandwell offers a variety of services to our clients and families affected by Thalassaemia.  We offer someone to talk to and provide support such as advocacy at meetings with school, council services, health providers, Birmingham Children’s Hospital and the Sickle Cell & Thalassaemia Centre at Birmingham City Hospital.

“We encourage blood donation especially from the Asian, African and Caribbean communities.  We all need to continue to raise awareness about Thalassaemia everywhere we go, it is an ongoing process.  Stay safe and be well.”

Rachel McFee –  Chief Executive Officer, OSCAR Sandwell

Click for more information or to donate

Thalassaemia Awareness Support Group (T.A.S.G.) is a carer and patient-led voluntary organisation which operates by its own Mission, Aims and Objectives to deliver a unique service to individuals and families with Thalassaemia and the wider community. TASG is in care of a Sickle Cell and Thalassaemia charity called OSCAR Sandwell.

Thalassaemia Awareness Support Group Facebook

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